Showing posts with label where we are. Show all posts
Showing posts with label where we are. Show all posts

Thursday, April 12, 2012

I Lied

On Monday, I posted that I had no expectations that the meeting set up by Hope's ICM worker would result in any real help for us. At the time, I thought that is what I believed. Alas, I was kidding myself, The Dad, and everybody else at that meeting. I only realized it today.


The ICM worker called today and said the SPOA committee turned down her request to transfer Hope to a program that would meet her/our needs- one with on call 24/7 crisis management, behavior management services, and regular respite. I wasn't surprised, but after I hung up I found myself close to tears.


SPOA wants more records of psychological and psychiatric testing on Hope. They already have all the records of every evaluation that has been done on her. There is nothing else to give them.


Hope had her usual difficult morning, but did make it to school. This afternoon, I do not have it in me. I took her book bag without looking at her communication log or homework and set her in front of the TV, where she  will happily vegetate until dinner. After dinner, it is medication and bed. Therapeutic? No. It is what it is.

Thursday, December 29, 2011

Change Isn't Necessarily Good

Some people welcome change. Some people fight change. Change itself is neither good nor bad. It is unavoidable. Nothing stays the same.

This is more philosophical than I am prepared to deal with at this point in time. I find myself with no choice. Hope's behavior is changing. She has always had a tendency to touch everything. She has always been destructive. Now it is constant. She takes everything that catches her eye. She breaks everything she touches. If she is out of eyesight for a moment, she is found in the middle of a mess.

My dilemma? I am not sure if she has made progress and is now working through her terrible twos or if everything has her so overloaded that she has regressed to that age. I guess it is not necessary to know whether it is progress or regression to get through it. I will say that it very hard to baby proof your house against a six year old. It is also very hard to convince people in the outside world that this very normal looking six year old needs to be supervised as if she was a toddler.

Since I am not sure, I am going to choose to see this as a sign of progress.